Question

Difficulty: Very hardEnd of Life Care

An oriented and competent client with progressive amyotrophic lateral sclerosis (ALS) is receiving palliative care and continuous non-invasive positive pressure ventilation. The client tells the nurse, "I am exhausted from fighting this. I want to take off this mask and let nature take its course." The client's adult children are at the bedside, visibly distraught, and state, "He is just having a bad day and is depressed. You cannot take it off, he will not survive the night!" There are no advance directives on file. Which action should the nurse take first?

  1. Request the family members to step out of the room temporarily to privately explore the client's feelings and verify voluntariness.Answer
  2. B
    Organize an immediate interdisciplinary care conference with the provider and family to establish a consensus on the plan of care.
  3. C
    Inform the family members that the client is competent and possesses the absolute legal right to refuse life-sustaining interventions.
  4. D
    Request a psychiatric consultation to formally evaluate the client's decision-making capacity and screen for clinical depression.

Answer

The nurse should ask the family to step out of the room temporarily to privately explore the client's request.
The priority action is to assess the client's request privately. A competent adult has the right to refuse life-sustaining treatment, but the nurse must ensure this decision is made voluntarily and is not being influenced by the family's presence or distress. Assessing the client alone allows for open, therapeutic communication about their exhaustion and end-of-life wishes.

Step-by-Step Solution

1
Analyze the clinical situation and identify the conflict.
A competent client is requesting withdrawal of life-sustaining treatment, but the family is actively opposing it due to emotional distress.
Understanding the competing interests (client autonomy vs. family grief) is essential for prioritizing the next nursing action.
2
Apply the nursing process (Assessment first).
The nurse determines that more information is needed directly from the client regarding their request.
Before intervening, the nurse must ensure the client's decision is informed, consistent, and voluntary.
3
Establish an appropriate environment for assessment.
The nurse decides to separate the client from the family temporarily.
The family's acute distress can inadvertently coerce the client or suppress their true wishes; a private assessment guarantees the voluntariness of the client's decision.

Key Concept

Client Autonomy and Private Assessment in End of Life Care
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